UPDATE

So, I went and saw Nick today. He seemed to be doing better when I saw him, versus yesterday. He only had one episode today where he dropped his sats, so that is better. I spoke with his doctor, they are starting him on a two week dose of steroids. This is to help his lungs mature a little more. His doctor is concerned with his lungs. They did an x-ray, and saw fluid, and that his lungs are just not looking well. She doesn't feel that they look worse than what his age would suggest they should look, but she wants to try to make them better. She felt that his vent pressure should be able to be lowered by now, and she can't do that, so the steroids are the next step to getting there. There are some risks with the dose of steroids they will give him. They will have to monitor his gluclose levels because the steroids can make those higher. There are also some risks for developmental delays due to the course of steroids. The type of steroid they are giving him has the lowest risk, and there have been studies showing amount and duration of the treatment can have an impact on the risk of having any complications. She felt his risk was really low for this, and the benefits of having the steroids for him right now far outweigh the possible risk of delays.

He still has his feeding tube and is getting 1.5cc's of food per hour. They will go up again tomorrow. They plan to weigh him tonight, so I will have a new weight for you tomorrow. Other than that, things are pretty much the same.

Thanks for the comments you have been leaving. I don't get to talk to you all much, so it is nice to hear from you. Again, thanks for all your positive thoughts and prayers. We appreciate all the support.

OH, another photo from today. It isn't wonderful, but he has his eyes open and you can see his nose... I had a special request from his Aunt Tiffany to see his nose... yeah, looks like he got my Italian nose.