video of Nick playing with one of his presents...towards the end he will dance and sing for you!
Monday, December 28, 2009
video of Nick playing with one of his presents...towards the end he will dance and sing for you!
Thursday, December 17, 2009
And he is clearly proud of himself! (By the way, yes that is a cup - Out of every toy I have ever given my child, his favorite two things, a cup and sunglasses- kids?!)
Sunday, December 13, 2009
Thursday, December 10, 2009
Tuesday, December 8, 2009
We are getting ready for Nick's birthday party this weekend! LOTS of photos will come!
Tuesday, December 1, 2009
Nick at 5 days old with a stuffed moose.
Nick last night with the same moose. Boy how you've grown!
Monday, November 30, 2009
Tuesday, November 24, 2009
Also this weekend, Nick displayed a new talent. He can now, go from sitting, to laying, to a crawling position, and then back to sitting. This is a big step for him. He has demonstrated that his little shoulders are strong enough to get crawling. He has been getting on his hands and knees more and more, and has even made a few "steps" forward. It won't be long before the headline for the days blog is "Mobile".
That being said, I am NOT READY TO BABY PROOF! I started looking around at the house, and oh my, I have my work cut out for me. So, I thought I would ask you... any baby proofing tips? I know the standard, remove anything they can reach, cover outlets, etc. I also know that kids have a great way of teaching you things you should have baby proofed. So, I thought I would learn from you! Please share!
Thursday, November 19, 2009
Monday, November 16, 2009
Nick doesn't take 24-28 ounce of formula. I think he has taken that amount maybe twice. He is usually at an average of 20 ounces. That is his normal. So, while I still am insisting that he take somewhere between 18-20 (more if he will indulge me). I do allow him as much jar food as he wants. I offer him a bottle, if he takes more than 3 ounces, he can have a jar of food. The other day, he took 6 jars! That is a lot of food for such a little guy, but he loves it.
We started meat as well, which is great because it has so many more calories and protein than the regular food. We will see how it goes.
In other Nick news, he has started waving. I will post a pic soon of this cute new addition to his repertoire. He loves to wave "Hi", however, he doesn't seem to understand the concept of bye. He looks at me like, I have already said Hi to you, why are you waving again.
I love it when my little man learns new things!
Tuesday, November 10, 2009
Nick's growth curve has flat-lined a bit, causing much concern. Each previous preemie clinic, the doc would always say, "I am not worried, I am just concerned". Today, he said "I am worried, very worried." They started talking about "failure to thrive". I know some about failure to thrive, but will probably learn more about it in the next few weeks. I am trying not to worry too much about the failure to thrive. He is not there yet. They said that the only reason they aren't admitting him right now for testing, is that he looks so alert, healthy and happy. They said if he was lethargic, they would probably admit him now, but since he seems to be fine, they are going to give him 6 weeks to pack on the pounds.
I know that right now, there is nothing that I can do. I have to just keep doing my best to make sure he gets the maximum amount of food that I can get into his body. If that means waking 1 - 2 times a night, that is what it takes. Bottom line, I just want him to be healthy, and if we can get some answers, I want that. As a mom, you don't want anything to be wrong with your child, that alone is scary and frustrating. For now, I will wait and see what he can do. When the going gets tough, the one thing Nick can do is rise to the occasion.
Now for a little comic relief so to speak:
Things I learn/ponder/question while waiting in the doctor's waiting room:
- If your child is sick, please keep him/her out of the "well" child side. They have a sign there for a reason, and I am here with my child just for a check up and don't appreciate your kid coughing all over me and my child
- If you let your 6 year old drink and entire 20 ounce bottle of mountain dew (which I think has about 6 million grams of sugar), they will NOT stop climbing over the chairs, yelling, or sit still no matter how many times you ask.
- Asking why your child is acting like a maniac after he drank a 20 ounce bottle of mountain dew will result in dirty looks from most others in the room.
- If you are trying to get an accurate weight on a child, might I suggest allowing the parents to take off the wet diaper.
- Telling me that you are worried about my child, and may put him in the hospital for a week should never be followed by the phrase "but I don't want you to worry, enjoy your holiday"
Just a few of my observations today....
Monday, November 9, 2009
Tomorrow is another preemie clinic appointment. While I could freak out because I know he hasn't gained near the weight that they want him to, I am remaining calm. He eats, he grows and he develops. Beyond that, I can't change his appetite, despite what they think. And he is growing. I was looking at him today, and he looked so long. I can't believe my baby is growing into a little boy. I am anxious to see how tall he is.
As for now, I am just in the cusp of writing all these thing to update everyone. I will write more this week. Have a good week!
Tuesday, November 3, 2009
Friday, October 23, 2009
Sunday, October 18, 2009
Thursday, October 15, 2009
We aren't going to change anything at this point, which means I wake Nick up to eat once in the middle of the night. We are still on increased calories. They just now have come to the conclusion that while he is not on the growth curve in the place they would like him, he is on his own curve and that is ok. As long as he doesn't deviate from the curve, we are cool. They want to see him back in a month for another weight check. If he is still hovering in the 5th percentile, they are good to let him go and see him back in a few months (versus every month).
So, for now, all is good. The occupational therapist commented that she thought developmentally, he was right on track. She said she couldn't quite gauge everything, but she felt like, given what she saw, the stuff he isn't doing yet, (sitting up) is most likely due to the fact that HE WILL NOT BE STILL. She felt like he can do all these things, he is just so active, he can't be bothered with a little thing like sitting still. She did stop the therapy session and turn to me to ask, "Is he always like this?" Yes! He moves constantly... even in his sleep.
Monday, October 12, 2009
So, this morning while waiting for his ECI therapy appt, I went through his clothes. We are finally almost grown out of 3 month clothes ! YEAH! I packed away all the sleeveless clothes. I packed away most of the 3 month shorts and t-shirts. I got out all the fall clothes, washed them and hung them up. He is all ready for fall! Of course, I watched the news, it will be in the 90's again in a day or so. Welcome to Southeast Texas!
Nick's ECI appointment went well. She gave us some new things to try, and again we are just keeping with the same stuff. Trying to encourage him to sit up and play. Strengthen his shoulders, and use his tummy muscles.
His tummy is doing better, and the diaper rash is doing better as well. I have been letting him be naked as much as I can. He actually spent a lot of the weekend butt naked on a sheet saver from his bed. He loves being naked! Some of the time, I wasn't quite as brave, so I used a cloth diaper on him. Not cleared up yet, but he is getting better.
Sunday, October 11, 2009
Sunday, October 4, 2009
Thursday, October 1, 2009
Wednesday, September 23, 2009
Monday, September 21, 2009
Nick had two appointments today. I think he is responsible for getting UTMB out of the red, but that is a post for another day. We met with Kristin, the study formula nurse. Nick got his weight check... 14lb, 6 oz. He gained 6 oz in 1 week! His average for the last 4-5 months has been 1/2 pound every two weeks. He gained almost a half a pound in a week! His preemie clinic doc will be so happy! (I hope)
Sunday, September 20, 2009
5:30 wake up and jump in the shower, hope to be able to shower, blow dry and fix my hair, put on my makeup before Nick wakes up.
6:30 If Nick hasn't already awaken, get him up, dressed and wrestle him into taking a bottle**
7:30 Out the door, taking Nick to Stacie's house then me to work
8:30-5:00 Me at work
5:45 Pick Nick up, have a little play time, wrestle him into to taking another bottle**
6:30 Feed Nick dinner, bath time, bed time
7:30 Start studying/homework
11:00 Finish up laundry, get bags packed and ready for tomorrow
11:30 bedtime for me
** I don't actually wrestle Nick, but for some reason, I think he gains arms and legs when I try to give him a bottle.
Nick is doing well. We are still trying to pack on the pounds. He is starting to take his bottles better, some nights I don't even have to get up in the middle of the night. We are continuing to look for baby foods that have the most calories so that he can gain the maximum weight. He goes back on the 14th of October for another weigh in. He did have his 9 month pediatrician appointment last week. 14 pounds, 25 inches. Even after the increased calories, he is only gaining about 1/2 pound every two weeks. I think the more calories they make him take, the more his little body has to burn.
I took some video this weekend of the rocking he is doing while up on his knees, his precursor to crawling. Hope to post it soon!
Wednesday, September 16, 2009
Wednesday, September 9, 2009
That doesn't mean my little man hasn't been up to his old tricks, and a few new ones. Nick had another preemie clinic appointment last week. He weighed in at 13 pounds 8 ounces. As you may (or may not) suspect, they were not happy with the weight gain. Nick had even dropped .2 percent in his weight percentile. While .2% isn't a lot to most of us, a negative move is not a good move. So, we upped the calories of his bottles again. I am now mixing his formula so that each ounce is 26 calories. They also decided that waking him up each night is a good idea. So, all that time I spent getting him to sleep through the night, gone. I set my alarm each night and wake him to get him to take a bottle.
They said they would like him to gain 20 grams a day. Right now he is only gaining on average 10 grams a day. Not sure how well this is all going to go over. We are trying. It seems that the bigger problem for Nick is that he is in CONSTANT MOTION. He never stops. Feet, hands, mouth, doesn't matter, something is always moving.
Tummy time is excellent. He likes being on his tummy. The last few days, he has even started getting up on his knees, rocking a little, and inch worming a little. It is not very often, but it is defiantly a step in a crawling direction. I am sooo not ready to baby proof the house! Sitting up seems to be a little more challenging for him, mainly because he would rather be held standing so his little feet can go, go, go. He seems to have no time for this sitting down stuff. When he does figure out this moving, thing, watch out. I will try to get his movements on video, it is a sight.
Thursday, September 3, 2009
Love you Nick,
Wednesday, September 2, 2009
Monday, August 31, 2009
Wednesday, August 26, 2009
While I am not sure that I would classify my emotions as post traumatic stress syndrome, I don't know that I can fully classify my emotions. I know I felt an overwhelming sense of dread when I was discharged from the hospital. Not being right down the hall from Nick was extremely hard. I know that I called the NICU first thing every morning, and last thing every night to check. I often called during the day, especially if he was having difficulties, or procedures. I often called in the middle of the night when I got up to pump. I remember being so incredibly careful with my cell phone, as I felt that was my only life line to my son. I would sometimes check my phone numerous times in an hour to be sure they didn't call. I went to the hospital every day, all 111 of them.
I remember jumping, and my heart leaping out of my chest when my phone rang, and I saw the hospital number on the phone. I remember reading every thing I could get my hands on about preemie babies, what to expect, what could happen, and looking for the ominous signs in my own son. I remember his bad days where his heart rate would drop in the 40's and my heart would drop then race, watching the monitor every second to see him recover. The hardest days were his bad days. The days when he would have multiple apnea spells a day.
It was the most incredibly hard time in my life, and I never want to relive it. I sympathize with every parent who has been through that, is going through it, or will go through it. I wish that I could say something to make it better, but I can't.
The only thing I know for sure, is Nick is okay. He is home, where I can be with him hours a day, instead of minutes. He is home where I can hug him, love him, kiss him, and care for him every minute of the day if I choose.
There are after effects of the NICU. I know that any type of sniffle sends me almost into a panic. I know that certain things can be so much more dangerous for Nick, but despite all that, he is here. I admit, I still go check on him every night, put my hand on his back to feel his breathing, and maybe I will do that for a while. Everyday, I get a little more confident that everything will be okay.
While I sometimes grieve the loss of things "normal' with bringing home a baby, I know that for both Nick and myself, this whole experience has meaning. I have faith in God that there was a reason, it can only make us stronger. At the very least, he will have a great story to tell when he gets older. How many kids can say I only weighed 1 pound 8 ounces. That among many other things makes Nick incredibly special!
Friday, August 21, 2009
While it has taken 8 months for my little guy to grow into his outfit, despite the tags 3-6 month size. The most important thing is that he is in it, and apparently happy about it.
The other day, I was in Carter's. They had a good sale, and I was trying to get a jump on some fall/winter clothing. Anyway, I saw the most adorable birthday outfit for Nick's one year. I started through the rack, looking for the 6 month outfits. When I voiced my displeasure that they had none, my mom reminded me that they would not have any. They don't make 6 month birthday clothes. As I was voicing my displeasure, another woman overheard us. She asked why Nick was so small. When I told her he was a preemie, she started talking to me about her preemie. She had a son as well. She was actually at Carter's looking for t-shirts and shorts. Her son was 3, and potty-training, but he only fits into 18 month clothes, which are still a lot of onesies, with snaps. Not a good combination for a potty training child.
It occurred to me, after going back and reading Cindy, AJ's mom's comments, that AJ, who was only slightly smaller than Nick at birth, can fit into 18 month clothes at 5. I guess what strikes me, is all the doctors say that 95% of preemies catch up by the time they are 3. Somehow, I think their statistic may be a little off.
Thursday, August 20, 2009
Anyway, I asked a lot of questions, he seemed to be ok, but of course I was freaking out. I thought about taking him to that urgent care clinic. I decided to call his doctor's office and speak to the nurse on call. It took a while for her to call me back. In the mean time, I had arrived at my mom's house, and he seemed fine. He was talking, kicking, smiling, etc. He had no signs of bruising or anything like that. He really seemed fine, but I couldn't get it out of my head that if something happened to him, I would never forgive myself. I went back and forth debating on taking him for like an hour. I finally decided to take him home, keep him awake for a while and wait for the nurse on call to call me back.
He ate dinner fine,(whole jar of peas, whole jar of bananas) and right after the nurse called. She got some info, and decided that she too felt like he was fine, but to not let him go to sleep until 8pm at the earliest, but if I could keep him up until 9 that would be good. Now, he had not had a nap since like 4:30, so you can imagine the pile crankiness that he was last night. Anyway, she also wanted me to wake him every two hours through out the night. Make sure he was moving ok, no bruising, opening his eyes focusing etc. So, I put him down at 8, then got up EVERY TWO HOURS. Yep, 10, midnight, 2am, 4am, and 6 am. I finally stopped worrying about him at 4 am when I woke him, he smiled, started kicking and decided that it was time to play, and he did not want to go back to sleep.
I believe the right term is "baptism by fire". Honestly, with all that he has been through you would think I would be used to this, but I guess you never get used to worrying about your child.
Monday, August 17, 2009
He definitely does better when he has a toy!
Mocha helps with tummy time. Nick is always more likely to actually stay on his tummy when one of the dogs participates in tummy time.
Those of you who know me well, know that I LOVE shoes. It is a sickness that I am happy to own up to, but one I will never change. Have you ever noticed the adorable shoes for babies? They are sometime irresistible. While I love shoes, I fully appreciate the fact that babies, don't. So, Nick owns, 3 pairs of shoes. He owned 2 pairs until this weekend, when I saw a pair of shoes that I could not resist purchasing for him
I think they are adorable! (By the way, on my computer, this photo is horizontal, don't know why it is flipped) Anyway, had to get these. It isn't quite cold enough for them yet, and right now, when he wears them, his main goal is taking them off and putting them in his mouth, but the really were just too cute to not buy. Technically, they are slippers, so they aren't really "shoes" right?
Tuesday, August 11, 2009
Some friends at my exercise class suggested I try Nick with some "big people" foods, to try to encourage a little weight gain. I thought I might give it a try. I made some home made mashed potatoes. (With Nick's formula, not milk or butter.) He liked them. This weekend, his grandma offered him a little guacamole. Loved that too. I bought him an avocado, and he has added a half an avocado to his daily meals. He loves the avocado. It has good fat, and great vitamins. I hope to make him some homemade squash and peas soon.
Thursday, August 6, 2009
Monday, August 3, 2009
Sunday, August 2, 2009
I am sorry I was a day late in posting this. We were so busy yesterday, running errands, and all that we do on the weekend. You are such a trooper to run around with me. I feel like you have changed so much in the last month. Do I say that every month?
I swear you grew 3 inches over the last two weeks! I know you probably haven't, but you have been growing. While your weight seems to never catch up to standards good enough for the doctors, your height is great. I think that is part of your weight issue, you just keep getting taller and taller. That and your CONSTANT movement.
You spend your time during the day playing, talking, rolling over to one side and back again. Your favorite time of day is breakfast and dinner. You are so social, that the opportunity to sit and have a "conversation" with me over peas, is fantastic to you. You always smile and laugh when I feed you.
It is always a toss up for me what my favorite part of the day is. I love feeding you, but at night, after you have had your bath, and bottle, and are just laying in my arms, words can never express the peace and love that I feel. You lay on my shoulder, and every once in a while, you will pop your head up and look at me and smile. You could probably ask for anything in the world at that moment, and I would get it for you.
You continue to be the biggest blessing in my life. You make me smile, you make me laugh. You are an amazing little boy. I can't wait to see what you do next.
Love you Nick,
Wednesday, July 29, 2009
He is getting better at tummy time. He even enjoys it, especially when he can be on the bed and look down at the dogs playing. I swear my hands were only off for a second. Long enough to take the photo!