Rough Day

Today, was not a very good day. Nick had quite a few de-sats today. He started doing this about 6 am this morning, and continued through out the day. The pulmonary therapist was monitoring him through out the day. Mostly, it appears that he has some extra fluid, that needs to be suctioned. When he gets too much fluid, he gets agitated and has a de-sat. This is the thinking for now anyway. They did start giving him a drug, verset, to calm him a little as well. They are hoping this takes care of the problem. There are a number of factors that could be causing this. They have started tapering off the steroids, and that may cause him to have a little set back. One option is to do a longer dose of the steroid. He has the extra fluid as I mentioned before. That could be causing this as well. The steroid would help that as well. The problem is that as long as he has the vent tube, he will continue to have extra fluid. So, they are just trying to get him strong enough to take out the vent tube. They did go up on his pressure and rate settings on the tube, but said they are still with in a low to moderate range which is good. The less support the vent has to give him, the better. This is another one of those problems that they aren't surprised he is having. They still have room to go up on his vent if they need to, and can give him another course of steroids if they feel that is necessary as well.


Other than that, he is doing well. They went up on the feeds again... 4cc's an hour. He is still handling his food well, and they are very happy with this.

They measured him today. He is 13 1/2 inches. So he has grown a 1/2 an inch. Pretty good for two weeks.

Nick had a pretty rough day today, but we are hoping for better tomorrow.