Tuesday, November 3, 2009

Hard Headed

I have no other words, but HARD HEADED! I knew when Nick was in the NICU, he was a strong willed little boy (he pulled out his own vent tube at 17 days old... he didn't even weigh 2lbs). Anyway, yesterday was another ECI appt for Nick. Ms. Mandy came in, and I was so excited to show her what Nick could do... sitting up, all on his own. Did he do it? Of course NOT. It took 20 minutes, 3 adults and about 10 toys to finally convince him to show his skills.

Everything else went well. I am a little concerned with his development. It seems like the gap between his adjusted age (8 months) and his skill level is increasing. I am trying not to compare him to kids his own age (more on that incredibly hard task later), but when compared to other 8 month old babies, he is clearly behind. Right now he is more like a 6 month old when you look at his skill level. I know that each kid develops on their own time, it is just hard to see him behind. I don't really know how to explain it. ECI is going to do another evaluation in January, then we will re-access our plan.

I have also noticed some other issues with Nick, things he should be doing, but isn't, like clapping. We are working on it. Ms. Mandy feels he may have some sensory issues. So we are going to start working on that. He doesn't want to open his hand to clap. There are some other signs that he may have sensory issues, but all are very minor.

Next week is another preemie clinic weight check... so we are concentrating on "fattening up". Nick had his RSV shot last week. His weight at that appointment was only about 3 ounces heavier than he was 2 weeks ago. Preemie clinic docs are NOT going to be happy with that. So, we are going to work very hard on adding some weight this week. Mainly that means I have to be more hard-headed than he is.

I can't believe Nick is 11 months! I almost have a 1 year old. I am starting to think about his party, which is exciting. I just can't believe it is almost a year. Where did this year go?


1 comment:

Mandy said...

i think nick is a little miracle wrapped up in a stubborn, lean little body! every time i check in on him, he seems to be advancing. perhaps you are right, that he is behind, but he is so early in the game, and you are so proactive, he is far more advanced than many babies that i have heard of born prematurely. nick is hard headed because he is a brennan, i am guessing;) get used to it. i doubt it will change. he has this sparkle of intellect, and being that he has been through so much this early in life, it will serve him well if he faces those developmental hurdles. i mean, come on, he yanked his tubes out before he should have even been born! so proud of you and nick. love,
aunt mandy